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Monday 30th September 2019
I had a lovely weekend – my two sisters and one of my brothers came up to see me on Saturday. I think they enjoyed their visit. I wasn’t too tired and had taken my pain killers in good time so was OK with all the chatting etc. It did wipe me out a bit on Sunday though.
I went with Nigel to do a bit of shopping – I think the fresh air woke me up a bit but I had lots of rest in the afternoon.
I had another bad night with my neck wound – really sore and itchy – I again had to clean it up and reapply Epimax cream which does cool it a bit. I am now taking two Co-Codamol tablets at a time which makes me very sleepy so after I took them at 04.00 I fell asleep until 08.30.
I had a small amount of scrambled egg for breakfast gearing myself up for the last week – hoping that the burning doesn’t get too much worse – it’s like a very bad case of sunburn at the moment.
Zapping was OK today – the mask was a bit tight but not so bad. We had to see Sophie the dietician again – just for a catch up. She seemed pleased and did understand how I feel about putting weight on after seeing my ‘then and now’ pic stuck on the front of the fridge.
Tuesday 1st October 2019
I had a better night’s sleep but it was really painful when I cleaned up my wound this morning – so bad in fact it made me cry.
This morning at Slimming World I again put on a pound – not sure how as I’m eating so little now. My friend Lyn was very helpful – got me to the scales quickly – she does rather take over – bless her.
Treatment was painful – the mask was very tight, pressing down on my wound – I thought that the headrest was higher but they said it wasn’t. It did feel like I was being choked – only a quick zapping though.
We spoke with Fiona and Laura after I was done. Nigel wanted to know if it was alright for me to take some OraMorph midway between my tablets to help with the pain when I clean the wound up. They said it was so I’m on even stronger pain control now but another that makes me drowsy – I slept most of the afternoon.
Wednesday 2nd October 2019
I had a better night’s sleep – I did wake and clean up my wound in the early hours but it wasn’t so painful.
Nigel gave me some more morphine this morning and I managed a wound clean-up and a warm shower. Side effect of the stronger pain killer is it gives me a floating dizzy feeling as well as being sleepy so I’m just doing a lot of nothing now.
Zapping was late today and yet another team. We had to explain about the cling film before they fitted the mask. They went to leave but Nigel had to remind them to position the table before doing the scan and zapping me which was worrying – what would have happened if he hadn’t been there? I asked them to talk to me while they were doing the scan but I didn’t hear a thing although Nigel said he heard them say something. I don’t think they turned the Tannoy on. I was gritting my teeth and made it without panicking.
The doctor looked at my wound and said that after therapy it will take another ten days or so before things start to heal quickly and that she will keep an eye on me during that time.
Thursday 3rd October 2019
Penultimate day – my throat was very tight this morning – it took a while to be able to swallow. I had to crush all my tablets up and take them with a spoonful of yoghurt. Can’t even manage the small ones now.
Before treatment we saw Henrietta, she was a speech therapist and something to do with swallowing. I don’t think it was much good speaking to her at this late stage as it’s my last day tomorrow but I listened and nodded at the right times.
I had a bad day with the mask – very tight and I felt I couldn’t breath – it took three tries to get it fitted where I could breathe a bit. They were very good though and the zapping was quick.
Friday 4th October 2019
Last day of treatment – I thought I would be more excited than I was – I think it is because I am so tired and have been for the last couple of days.
Today the mask hurt a bit but I pushed through that. We gave the team a big box of Roses chocolates as a Thank you. Adam was kind enough to push me back to Reception so that Nigel could video me coming in and ringing the bell signalling the end of my treatment. I have been putting my daily Vlog on YouTube – The last one is here.
Carol gave me some dressing to cover my wound at night (to stop it sticking to the sheets) and we had to pick up some Flamazine cream from the Pharmacy. We watched a couple of lads busking by the Coffee Shop as we waited to collect it. They were raising money for the hospital so we chucked a couple of quid in their bucket.
I had intended to stop the Blog here but I think I will do another one when I have made a bit of a recovery so you get an idea of how long it takes. At the moment it’s so difficult to swallow I’m not eating anything worth talking about hardly drinking and it’s even difficult to get 5ml of OraMorph down – so I’m struggling.
6 thoughts on “My Radiotherapy – Final Week”
Well done Sis so proud of you and how you have coped with all you have been through for the last 6 weeks, a well earned rest for you now stay strong and positive you have been brilliant.😘
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Thanks for your wishes. I think I peeked early compared to what they told me but in a way that’s good as I can start healing earlier as well.
Nigel has been worried about me because I couldn’t eat or drink – but with the drug changes (only Morphine and Fetanyl patch pain killers now) it’s getting easier.
I’m wearing a bandage on my wound through the night which makes it more comfortable in bed – Nigel is telling me it looks better so I’m definitely on the mend.
You’ve been so amazing. To still have a sense of humour…
As you’ve shared the treatment, please share the recovery. We’ve been with every step of the way.
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Hi Katherine – I can’t tell you how good it was to finish the treatment but I wasn’t expecting the peek of the aftereffects to come so soon. Nigel was really worried for the first few days because I wasn’t eating and hardly drinking. He didn’t know what to do about it.
At the clinic appointment on Tuesday they checked my Obs which were all OK, sent me for a blood test and gave me some protein drinks. They prescribed some Fentanyl patches that along with more Morphine they thought would allow me to swallow with less pain. Things have got gradually better since then and now at a week since my last zapping I’m getting there – still only liquids but I have found that chocolate melts well on the tongue so is liquid after a few minutes.
Thank you for the encouragement you have given me over the weeks and watch out for the next Blog soon.
Your neck looks so sore. So glad that the zapping is done and you can start to heal. When you are feeling stronger let me know and I can come and see you with Lynn x Big hugs x
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Thanks Belinda after the last few days I’m now starting to feel much better. I’m starting to pick myself up and healing has begun. I’m sure Lynn will let you know how I’m doing when you talk to her.